Gulfside Hospice Guide
Frequently Asked Questions
We're here to help with answers to the most commonly asked questions.
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Support
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What support is available to my loved ones to help with my care?
Gulfside Hospice aims to provide your family with targeted support while they help you achieve your care goals. This may include:
- Emotional and spiritual support, instrumental help, and training from nurses, chaplains, and social workers
- Caregiver Support Services, including therapeutic support groups, caregiver trainings, and other educational offerings
- Volunteer services, including companionship, occasional respite, veteran pinning ceremonies and veteran-to-veteran visits, Patient and Caregiver Telephone Support (PACTS), Pet Peace of Mind support, and Gift of Presence
- Bereavement services for individuals, families, and groups to help understand and cope with grief and loss
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How can I obtain additional assistance at home above what may be provided by Gulfside Hospice?
- First, consider exactly what kind of assistance you or your loved one may need. Assistance with tasks like light housekeeping, meal preparation, medication management, or “sitter services” may be provided by a hired caregiver or, in some cases, one’s family and friends. Help with hands-on care, such as bathing, feeding, toileting, or mobility/transfers may require a personal care aide or CNA. Hospice volunteers may be able to provide companionship or occasional respite, but they cannot provide any hands-on care.
- Talk with your Gulfside social worker about private duty care agencies that serve your area and resources that can assist with the costs of care. Some forms of care may be covered or subsidized by long term care insurance, but traditional Medicare and supplemental plans do not typically cover additional home-based care while a beneficiary is enrolled in hospice care.
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What if my loved ones are traveling, or simply need a short break to continue caring for me?
- The Medicare Hospice benefit includes occasional Respite to ease caregiver strain and prevent burnout. Per the guidelines set by the Center for Medicare and Medicaid Services (CMS), Respite includes care for up to five nights at a contracted Skilled Nursing Facility (SNF) or at the Hospice Inpatient Unit. During this time all routine care, meals, and medications will be provided by facility staff so that your family can rest and recharge with confidence.
- Talk with your Gulfside social worker to access Respite care.
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How can I receive assistance with Advanced Care Planning, such as a living will or Healthcare Power of Attorney?
- Understanding the choices available and communicating YOUR choices to loved ones who may act on your behalf is vital, but the process of advanced care planning can be overwhelming. Talk with your Gulfside social worker about developing advance directives for medical decision making.
- Legal or financial planning, such as Durable Power of Attorney or directives for assets/ property, should be completed with the assistance of a qualified attorney or legal service. Your Gulfside social worker can help you find resources for these services in the community if needed.
- The Florida Department of Elder Affairs provides a statewide Senior Legal Helpline through which adults aged 60 and older may receive civil legal advice or referrals by phone. The tollfree number for the DoEA Senior Legal Helpline is 1-888-895-7873.
Insurance & Medicare
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Does enrollment in Hospice change my Medicare benefit?
- Enrollment in hospice does not change your Medicare or supplemental insurance benefits; any changes to a person’s Medicare coverage are driven by the beneficiary Open Enrollment.
- However, your election to use the Medicare Hospice Benefit may affect how you access care related to the terminal diagnosis. Talk with your care team about existing or potential medical appointments to ensure your goals are consistent with the hospice plan of care and the care you seek is covered under the Hospice Medicare Benefit.
- For more information about your Medicare benefit, contact your insurance carrier or Florida SHINE program at 1-800-963-5337.
Inpatient Care
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How does the Hospice General Inpatient Care Center work, and when might I go there?
The Hospice Inpatient Unit (IPU) is not truly a residence, but rather a facility in which a higher level of care can be provided for a short period of time to manage symptoms like pain, difficulty breathing, or restlessness that cannot be managed at home. These symptoms are assessed by your Hospice Care Team to determine whether transfer to one of the Gulfside Centers for Hospice Care is necessary, then re-assessed daily to determine whether your symptoms can be effectively treated to keep you comfortable in a less restrictive environment, like your own home. This is not intended as a long-term care option.
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If I can no longer remain at home, what are my options for finding a facility where I can receive my care?
- The decision to seek long term care in a facility can be daunting, and it is often accompanied by feelings of grief, anxiety, and guilt. Your Hospice Care Team can help you consider your most important needs to determine which level of facility care is the best fit for you. Your Gulfside social worker can provide you with information about facility types and their differences as well as benefits that may help with the cost of care.
- You can find information about facilities in your area and the care they provide at www.floridahealthfinder.gov.
Have another question that wasn't answered here?
Talk to your Gulfside care team or call our office at 800-561-4883.